Recommendation Summary

  • Specific demographic elements must be integrated into the data system to ensure that vision screening data entered is linked to the correct child with the goal of reducing duplication of services and improving coordination of care.
  • Demographic data items should follow the functional standards set by the US Centers for Disease Control and Prevention. Most of the demographic data points already exist in state integrated health systems or electronic health records. The following table outlines these data items:

Table 1: Data Items for Unique Identification of Each Child (12)

  • Patient ID (previously listed as “Medicaid Number”)
  • Patient ID: Assigning Authority ID (i.e., owning source)
  • Patient ID: Type (e.g., medical record number, IIS ID)
  • Patient Name: First
  • Patient Name: Middle
  • Patient Name: Last
  • Patient Alias Name: First
  • Patient Alias Name: Middle
  • Patient Alias Name: Last
  • Patient Date of Birth
  • Patient Gender
  • Patient Multiple Birth Indicator
  • Patient Birth Order
  • Responsible Person Name: First
  • Responsible Person Name: Middle
  • Responsible Person Name: Last
  • Responsible Person Name: Relationship to Patient
  • Mother’s Name: First
  • Mother’s Name: Middle
  • Mother’s Name: Last
  • Mother’s Name: Maiden Last
  • Patient Address: Street
  • Patient Address: City
  • Patient Address: State
  • Patient Address: Country
  • Patient Address: Zip code
  • Patient Address: County of Residence
  • Race
  • Ethnicity
  • Birthing Facility Name
  • Patient Birth State
  • Patient Primary Language
  • Patient Telephone Number
  • Patient Telephone Number Type (e.g., home, cell)
  • Patient E-mail Address